A genetic apt with probs

Well yesterday was suppose to see generics testing and get a test that used to test 44000 chromosones and now covers 100000 but after getting there and waiting An hr and half find out t insurance wont cover it. They used too but stopped. and we dont have anny funds to do it. So couldnt get it done. So flustering when not enough funds to get stuff done. And we have been running into this prob more in last month or two because insurance is cutting what they cover and its only going to get worse thanks to obama care this all makes meworry. I dont know alot about obama caere but I know its not good and it is going to cause all people and kids out there that need medical care to keep.them alive and they wont get it. This.makes me mad. People who really need this is going to suffer. Anyway already feeling hit from it. By way sorry for typing errors comp is crashed and hard to do on phone. So anyway they took pics and more family history so they can try to figure out whats going on. They wanted everyones,history cousins aunts uncle ect.... So maybe someday we will know something until then have to keep listening to drs tell us there is know reason to find out. Most likely he will be,like this his whole life. And there will be no cure or help and,basically a death sentence. And yes I heard this whole spill again. The thing is that they dont understand is I dont care if they do find something and tell me my son,only has a couple years to live or ten years ect... God is great and by finding out there,might not be a cure but at least there might be ways we can do things differently to make him comfortable and have a great life. I was thinking last night they probably are like this because they are tired of being the person to bring the bad news which I get. But,it still needs,to be done and maybe we will be a change and will be good,news. Although some more,info came up yesterday that was on muscle biopsy and now have an idea why neuro dr didnt say anything because he wants to be certain. Its making me,nervous though because I have seen the drs faces when they read the biopsy report and they go from talking,non concerned to concerned. Especially neuro dr. he.went from giving us a spill to saying we need to make this a priority? Hopefully nothing but waiting and not knowing is hardest. On other,news we were suppose to up cjs feeds from 16 hr to 14 hr and that increase would make pump run 10 ml faster which is around 2 tsp more an hr. Well we went downhill that was to much for his stomach. And he went from playin,to,lay