busy :)

last week went to the surgeon dr. for a follow up and everything looked good. switched to a smaller g button where swelling of surgery went down. 
Yesterday CJ went in and had tubes put in his ears along w/ throat tests.  Tubes doing good.  on throat tests said trac is no longer twisted.  and everything looked good. there was a part of the cleft bigger than normal but she said it wasnt big enough to worry about. so all checked out good there.
Had got the muscle biopsy back, they don't think he has mito.  They said something is wrong just don't know what.  It came back that his muscles fibers are slow. so on friday they are doing a spinal tap to go further into it to see whats going on.
Cj has been having problems w/ his stommach, so hope he can hold out till next week, but next week they are going to do a stomach empty test to see if his stomach is emptying right after last surgery.