March 12, 2012
been awhile
Been awhile since I updatd on CJ. Last week we went up to Omaha andhe was admitted into boystown hospital for a clean out. His colon stopped working enough to do its job. We got out late so stayed in a hotel. The next day CJ sick. Took him to Childens and found out he had a badear infection. The spiral of all this started w/ a cold a weekor two before. The ped dr. tried to get a head start jump by giving antibiotics. But he still ended up goingdownhill.
When we got back got test results back from Boston. Everything came back normal. So have to call them to see if they can do anything more for him. It's disappointing with still noanswers. Prayers may be al thats left.
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Hi,
ReplyDeleteI've been following CJ's journey for the past several months and continue to pray for him and your family. This evening I went back and read one of your posts from August when you listed more of his symptoms and it really got me thinking. I may be waaaaay off and I'm not a doctor, just a mom of a medically challenged little guy. I have a good friend that has most of the same symptoms as CJ and she went through tons of testing. Her diagnosis ended up being Superior Mesenteric Artery Syndrome. It has to do with the compression on part of the stomach or duodenum by a gastric artery. It is extremely rare with only about 500 cases ever reported. Thus, many docs don't know much about it. I have no idea if any of CJ's doctors have looked into this or if it truly fits, but the similarities were just too close for me not to at least mention it to you. I know how it feels to be fighting hard to find answers for your child and not being able to get them. Praying for endurance, strength, and peace for all of you!