another day in boston

Started yesterday morning. Had an apt. With pulmonary. They took xrays of chest throat basicalpy a bunch of xrays to see how pulmonary side is doing :) which believe is well. Also. She set up a sleep study consiltation for tomorrow. Wonering about a few nightly/sleeping issues. She also tried to get neuro to see us while here...didnt work:( looks like that is still for second tip we will have to do..was hoping for a miracle of one trip. Then after pulmonary we went to gi dr. Had apt and discussed what tests he thought needed done and what next steps would be depending on results from these tests. From there we went up and he got admitted to hospital to start the fun. We will leave last nights fun details out..well just say many diaper changes :) This morning was to finish with fun. Then after lunch they took him and knocked him out and finished cleaning him. Which ran into a problem there. They then ran tests on his stomach small intestine.large intestine and colen. After that but a cath in colon and though g button for tomorrows test of manometry...in a few areas. So overnight will be fun for him with those in. Also sorry for bad typing..doing this on phone.