Trip to er room and neurology apt

Well started with thursday night going for a regular g button change because valve,leaking and around button leaking. It should have been a fast switch instead,with new one right there and ready the new one wouldnt go in. we tried everything. Then we called local peds dr. and he tried and no luck so had to make a 2 hr road trip to er to get it put in. they ended up having to dialate a ways to get it back in. they had no idea or reason whit closed the second we took old out. But got new,one in and got home around 4 in the morning. On following monday had neurology apt. All went well told us they have no idea and he is a mystery child and thinks we need more genetic testing. Also wanted us to see orthopeadic dr for his mis shaped bones in anckles and legs. Now on to gi apt. This coming week.